- Norouzi, Kian;
PhD Student in Nursing; Tarbiat
Moddares University; Faculty Member
of USWR
- Abedi, Heydar
Ali; PhD in Nursing, Associate Professor;
Faculty of Nursing; Isfahan Medical
Sciences University
- Maddah, Sadat
Seyed Bagher; PhD in Nursing; Assistant
Professor in USWR
- Mohammadi,
Eysa; PhD in Nursing , Assistant
Professor in Tarbiat Moddares University
- Babaee, Gholamreza;
PhD in Biostatistics ; Associate
Professor ; Medical School ; Tarbiat
Moddares University
- Kaldi*, Alireza;
PhD in Sociology; Associate Professor,
University of Social Welfare and
Rehabilitation; Tehran , Iran
*
Evin, University of Social Welfare
and Rehabilitation, Department of
Basic Sciences, Tehran 19834, IRAN.
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ABSTRACT
Objectives :
In Iran a considerable percentage
of old people "living" in society
need to receive specialized health
services. In order to respond to these
care needs, developing and implementing
health and social care systems with
consideration of relevant factors
such as existing resources and facilities;
social and cultural issues and characteristics
of each groups of elders(healthy elders,
frails, home-bound) seems to be necessary.
Methods: At
the development phase of the care
model in this study methodological
triangulation is used including: 1.
Comprehensive review of current and
related literature. 2. Conduction
of an ethnographic study on a number
of Tehranian elders and their families.
3. Seeking opinions of a group of
experts on this issue using nominal
group technique, and analysis and
synthesis of the collected data were
employed to develop a community based
care system for elders.
Results & Conclusions:
The preliminary results of employing
this care system and examination of
expected outcomes such as enhancing
quality of life and hope in elders,
reflects the efficiency of this system,
although further complementary studies
and particularly cost benefit analyses
are strongly recommended.
|
Key words: Health
System Model, Community-based care, Senior
Citizen.
As we know in recent decades
human societies have been faced with a great
challenge, that is the unprecedented number
of elderly people as a consequence of more
healthy environments and the lowering of
mortality rates. It is estimated that in
2020 one billion of the world's population
will be older adults and 60% of this number
would live in developing countries and unfortunately
these societies are not prepared to encounter
the aging phenomenon and its social, economic
and medical repercussions. (Bartz, 1996)
Today, the great challenge
of health and social care delivery systems
is how to optimize the health status of
elders. (Eliopoulos, 1999)
Delivery of effective and
efficient nursing care to any group of clients
depends on recognition of their uniqueness
and conduction of comprehensive health care
needs assessment. Nursing as an academic
discipline has adopted a holistic approach
to the clients; their environment and any
other influencing factors. (ANA , 1982)
Recently the philosophy in
gerontological nursing has been changed
dramatically and this discipline has adopted
a health promotion and disease prevention
orientation. As a result gerontological
nursing has a great emphasis on active and
healthy aging and autonomy and self dependency
of elders. (Ebersol , 1990)
In recent years a variety
of system models for providing community
based health care services to the elderly
has been envisioned and implemented in developed
countries, which meet the special care needs
of different groups of elders. Day care
centers, home health care services, skilled
nursing care facilities, nursing homes,
congregate housing and hospice care are
some of these services. (Stone , 1999)
On the other hand in Iran,
a developing country, provision of specialized
health and social services to elders in
many extents has been ignored and only in
the end stages of elders' life this issue
goes under consideration by one of the following
traditional ways: A) provision of informal
home care by elder's relatives and lay caregivers
B) signing a contract between the families
and private home care agencies that in many
cases don't have required licenses and primarily
with profit incentives deliver their under
standard services. C) transfer of dependent
elder to a nursing home as last and worst
resort due to exhaustion of limited resources
in family caregivers. (Rastegarpour ,
1999)
Today it is strongly recommended
that all needed health services to aging
people should be provided to them in their
residential places and in the community.
The reasons for this emphasis are as follows:
- It is known that elders
are more comfortable and feel at ease
while are in their homes; and
- many studies have showed
that community based and home health care
are the more cost beneficial than hospital
based services.
In Iran, there is a considerable
percentage of old people 'living' in the
society who need to receive specialized
care and health services. In order to respond
to these needs, planning and implementing
health and social care systems with consideration
of factors such as existing and available
resources and facilities (financial and
manpower); social and cultural issues and
special characteristics of various groups
of elders (physically fit, frails ,home
bounds) seems to be necessary.
Self reliance and ability
to continue independent living in their
houses is very important to elders but many
factors such as deteriorating health condition,
declining economic status, dominant negative
viewpoints in community about aging and
aged people (e.g. ageism) and ever changing
policies and practices of health care delivery
systems discourage fulfillment of this ideal
situation. Ageing in place
is a term coined in gerontology to highlight
the significance of capacity in elders to
live independently in the community. It
means that elders remain
in their residential places as long as possible
and receive appropriate health and social
services (Kreuger1990). Aging in
place means that instead of removing elders
to nursing homes and residential institutions;
they would remain in their homes and have
their surroundings undergo modifications
to respond to their changing health needs.
Nowadays,
organizations that are responsible for providing
community based health care services are
faced with a great challenge; that is the
development and implementation of cost benefit
service packages for elders which prolong
the stay of elders in community and meanwhile
ensure that their life quality remains at
acceptable levels.
Health
systems in many countries implemented varieties
of community based programs, which have
been specifically developed for elders.
Home care services, community based health
care programs, respite care, day care, senior
centers, home maintenance programs, home
meal delivery; transport services are some
of these programs. (Broadhead, 1983)
Social
support is the most important predictive
variable that saves the elders from premature
movement to residential facilities. Studies
show that in almost all countries a large
part of home health services and social
support are provided to elders by their
families and informal caregivers. To ensure
that crippled and frail elders would receive
necessary health and social services cooperation
of these families as main resources of informal
care giving, with local formal authorities,
is crucial.(US Senate Special Committee
on Aging , 1988)
It should be mentioned
that our complete study consisted of two
consecutive qualitative (to yield a model
of community based health care system for
Tehranian elders) and quantitative (in order
to determine its effectiveness) studies.
In this article the qualitative part has
been discussed.
In this stage of study
(developing a community based care system
model) methodological triangulation was
used for collection, analysis and synthesis
of relevant data. Triangulation is the use
of multiple methods in the study of the
same phenomenon. The phenomenon investigated
is usually complex, like the human ability
to cope with chronic illness, and requires
in depth study from a variety of perspectives
to capture reality (Morse , 1991 ).
The three data collection
and analysis methods included:
- Conduction of a comprehensive
review of literature.
- Ethnography on a number
of elders living with their families in
an urban area in the 13th district of
the city of Tehran, Iran, to achieve indepth
and valid information regarding their
lifestyles , health beliefs, health needs
and their life situations.
- Obtaining expert (healthcare
administrators and policy makers , faculty
members of medical and nursing schools,
geriatricians, psychiatrists, nurses and
social workers, who had acquaintance and
expertise in service delivery to elder
clients) opinions using Nominal Group
Technique.
By combination and synthesis
of these findings as building blocks and
rudimentary elements, we proposed a model
for a community based health care delivery
system for elders in an urban area in Tehran.
As mentioned above,
in order to collect data about some relevant
issues, such as: lifestyles, health status,
health beliefs, and mode of health system
usage by elders dwelling in 13th district
of Tehran a micro ethnographic study was
conducted.. Ethnography, by definition,
is a means of studying groups of individuals'
life ways or patterns, and micro or small
scale ethnography is used for study of similar
social situations that in this study social
situation comprised of: lifestyles, health
beliefs and health behaviors of some elders
living with their families. Behavioristic
approach was used in data treatment and
interpretation of findings. As we know in
this approach the researcher is most interested
in revealing recurrent patterns in observed
behaviors . This approach is deductive and
use of this mode of interpretation deviates
radically from the intent of other interpretations,
which rely solely on induction. (Streubert
& Carpenter 1999 )
The main objective
for conduction of ethnographic study was
to substantiate the following preselected
categories of data:
- Health beliefs
- Health service usage
- Attitudes and practices about health
attainment and maintenance
- Familial and social relationships
- Social and recreational activities
- Daily living activities
- Attitudes and practices about sleep
and rest
- Nutritional habits
- Physical exercise
- Economical and welfare situations
- Spiritual beliefs and practices
Because we had interested
in collecting data about the above mentioned
categories, in both sexes, and in both healthy
and unhealthy conditions. Thus we adopted
a purposive sampling method as follows:
a) Sampling from
elders with good physical and mental health
condition (who had not been under treatment
for acute health conditions and were self
reliant in their ADLs) was done using health
assessment records in seniors' cultural
centers of the 13th district municipality.
Data collection by means of unstructured
interviews and participant observation -
as two usual data collection methods - was
conducted from 18 elders (12 men and 6 women)
until data saturation was accomplished.
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b)
Participation of 13 unhealthy elders in
the study (8 men and 5 women) was accomplished
through nursing home care service deliveries
and follow-ups. If the need for receiving
such services was deemed no longer necessary
but the required data were not acquired,
an informed consent was obtained about continuation
of friendly home visits which in many cases
have been welcomed by elders and their families.
To adhere to principles of making the ethnographic
record (language identification principle,
verbatim principle, concrete principle)
a large portion of interviews and observations
were audio-visually taped. Brief field notes
were taken instead of tape-recording if
the latter seemed inconvenient or ethically
inappropriate from viewpoints of researcher
or participants. After each session of data
collection, and as soon as possible content
analysis of documents for identification
of recurrent patterns, discovery of cultural
themes and taking a cultural inventory,
were done. To verify the confirmability
of findings, feedback from participants
was obtained and accuracy of conclusions
to a great extent was acknowledged by elders.
On the other hand and
in order to find some other characteristics
and specifications of the system we sought
the opinions and suggestions of experts
in this field using Nominal Group Technique.
Some justifications for using NGT are as
follows:
The Nominal Group Technique
is a good way of getting many ideas from
a group. It has advantages over the usual
committee approach to identifying ideas.
Group consensus can be reached faster and
everyone has equal opportunity to present
their ideas. NGT sessions have predetermined
steps as follows:
- silent generation of ideas
in written form
- recorded round-robin listing
of ideas on a chart
- discussion and clarification
of each idea on the chart
- preliminary vote on priorities
- discussion of preliminary
vote
- final vote on priorities
( Delbecq A.L etal 1971)
Sampling from experts
in elderly health and social services was
purposive and with consideration of factors
such as: expertise, experiences, motivation
and willingness to share ideas and contribute
to this study were sent a letter and invitation
to participate to NGT sessions.
List of invited experts
to the panel were as follows:
- Assistant Professor of
nursing department in university of social
welfare and rehabilitation (USWR)
- Psycho- geriatrician
- Hospital manager and assistant
Professor of USWR
- Deputy of research in USWR
- Deputy of treatment and
rehabilitation in USWR
- PhD in sociology
- Representative of family
office in deputy of health in ministry
of health and medical education
- PhD social worker
- Manager of a comprehensive
rehabilitation center
- Manager of comprehensive
rehabilitation day center for elders
- Representative from deputy
of rehabilitation in Behzisti (Welfare)
organization
- Master degree in rehabilitation
management
- Head of community-based
rehabilitation headquarter in USWR
The main topics for discussion
by the panels was determined with consideration
of relevant literature and consultation with
experts in this field. These topics were determined
as:
- Target groups of elders
- Composition of health
care team in that system
- The most necessary services
- Geographic location
- Time and frequency of service
delivery by the system
- Cost of services and how
to compensate expenditures
- Manager and coordinator
of services and his /her job description
- Cooperation with elders
families, volunteers and NGOs
- Evaluation about efficacy
of services
- relationship between this
propositional system and other pre-existing
health and social care systems
Target group:
- Frail elders (elders around
70 years, with an acute or chronic illness
and a decline in ability to perform their
ADLs).
- Elders with low socio-economic
status with fair, moderate or poor health
conditions
Health
care team:
- Nurse, general practitioner
, social worker
- Nutritionist, psychologist
, volunteer persons , healthy elders and
families
- Referral of elders to specialist
physicians and rehabilitation centers.
These services will be provided offsite.
Important deliverable services:
- Routine and periodic assessment
of elders' health statuses and filing
these health records.
- Teaching, giving information
and counseling elders and their families
about health, family problems, legal issues
and so on.
- Referral of elders to other
health, rehabilitation and relief facilities
and follow-up (Here the nurse or social
worker acts as case or care manager)
Geographic location:
a) initially one or two community-based
care centers should be founded as pilot
centres and after troubleshooting and optimization
of their services at least one center should
remain in every area zone of municipalities.
b) The panel recommended that the community
based centers should be located in pre-existing
health and social service foundations such
as hospitals and clinics, behzisti centers,
community centers in state sector and likewise
in private ones such as non governmental
senior centers and charity centers. Thus
the activities of these centers would be
very cost beneficial.
Name of centers (with consideration
of their philosophy, mission and approaches):
The following titles (in order
of priority) were recommended for the center:
- seniors' health house
- community based care center
for senior citizens
- institute of health and
social services for the worldly - wise
Time of service delivery
(hour per day and day per week):
- it was recommended that
the predicted services should be delivered
around the clock, seven days per week,
for assurance of accessibility of services.
- The panel emphasized precise
scheduling of presence and activities
of all workers in these centers based
on predetermined tasks ( i.e. educational
, research, consultations, health assessment
and delivery of community based services
, staff meetings) in morning , evening
and night working shifts.
Expenditures and revenues:
- in order to cover part
of expenditures; all concerned and beneficiary
authorities (i.e. ministry of health,
behzisti organization, mayoralty, state
and private insurance companies) should
support and financially contribute to
capital and up keeping expenses.
- The panel suggested the
following policies as safeguard measures
that allow community based centers to
render their services cost effectively:
More emphasis on semiskilled,
lay and volunteer workers than on specialists
and experts; contribution and cooperation
of these centers with universities in topics
such as: population lab studies and surveys;
practicum and field work of social and medical
sciences students; acting as suitable environments
for service learning; part of the services
in these centers will be delivered by instructors
and faculty members of universities.
Coordination and management
of activities:
- Preferably a masters degree
public health nurse with due experience
in this field would be appointed as manager
and coordinator of the center. The head
of his/her activities would be: coordination
of routine works in the center (educational,
research and service delivery); cooperation
with authorized program planners and policymakers
concerning development, expansion and
extension of services in the future.
- The director of the center
could be a general practitioner who has
spent a short course on geriatric medicine
and has practical experience in service
delivery to older adults. He/she would
coordinate necessary referrals from the
center.
Participation of elders' families,
volunteers and NGOs:
- It would be necessary
that families and informal care-givers
be enabled and empowered through education,
counseling and substantial and moral supports.
- Creation and fortification
of interrelationships with non-governmental
organizations and development and implementation
of joint programs.
Evaluation of activities
in the center:
- Examination of elders and
their families' quality of lives before
and after service utility.
- Any improvement in informal
care-givers and family's participation
in direct and indirect care-giving activities
and self sufficiency of elders in their
activities of daily living.
Ethnographic themes comprise
another part of findings in this study,
which assisted researchers in needs assessment
and thus allowing for tailoring of services
in the health system model. After content
analysis of participant observations and
interviews according to qualitative data
treatment and analysis principles, the following
categories emerged that will be used for
fine tuning of activities in the speculative
health system.
- Cultural theme revealed
in health beliefs: {Health and physical
fitness are gifts from deity and extra
territorial and supernatural causes have
definitive influences on health status.
With increasing age health condition deteriorates
irrespective of observing or not observing
hygienic guidelines}.
- Cultural theme revealed
in therapeutic regimes and medication
adherence: {Poor medication adherence,
discontinuation and changing medication
schedules arbitrarily, omission of some
items from their medications based on
personal beliefs and experiences or suggestions
from other lay persons, tendency to discontinue
consumption of some drugs without renewal
of recipes/prescriptions}
- Cultural theme revealed
in physical and mental health habits:
{Lack of appropriate knowledge, attitude
and practice about physical and mental
health promoting routines}.
- Cultural theme revealed
in family and social relationships : {Perceived
strain and tension in familial relationships,
ineffective familial relationships and
intentional seclusion}.
- Cultural theme revealed
in social and recreational activities:
{Monotony and unproductivity in leisure
times, lost opportunities, no idea and
sometimes negative viewpoints about leisure
activities}.
- Cultural theme revealed
in habits and beliefs about sleep and
rest time: {Lack of knowledge about value
and importance of a refreshing and comfortable
sleep and rest specifically in old age,
lack of knowledge and practice regarding
relaxation techniques and facilitating
factors on sleep, perceiving many sleep
disorders as normal and inevitable in
aging }.
- Cultural theme revealed
in habits and beliefs about food and nutrition:
{Sensitivity and interest about foods
and nourishments; believing that good
nutrition is the best way for health maintenance
and improvement; selection of foods mainly
based on palatability and personal preferences
instead of consultation with physicians
and nutritionists}.
- Cultural theme revealed
in beliefs and behaviors about physical
activities: {A dominant misconception
that physical exercise and sports are
luxurious and not important for elders
(although some elders verbalized that
exercise is beneficial and very important
for elders but nearly all of them didn't
regularly engage in exercises}.
- Cultural theme revealed
in welfare and economic status: {A wide
discrepancy between elders financial and
welfare status}.
CONCLUSION
AND DISCUSSION |
The main concern of the researcher
in this study was to develop a prototypical
community based care system for Tehranian
elderly citizens that would fulfill part
of unrecognized and unresponded community
dwelling elders' health care needs. To ensure
that the main characteristics of care delivery
systems would be accomplished in this proposed
model (e.g. comprehensiveness, accessibility
, quality services, emphasis on preventive
and health promotive measures) and fine-tuning
the interventions to unique socio-cultural
backgrounds of the elders and their families;
methodological triangulation including:
- Comprehensive relevant
literature review ;
- Attainment of experts'
opinions through nominal group technique
and
- Conduction of micro ethnography
study as an extensive and objective needs
assessment approach, has been employed.
The preliminary results of employing this
care system and examination of expected
outcomes such as enhancing quality of
life and hope in elders reflects the efficiency
of this system, although further complementary
studies and particularly cost benefit
analyses are strongly recommended.
|