NABIL YASSIN AL KURASHI, M.B.B.S.,
FFCM (KFU)
President, Saudi Society of Family
& Community Medicine
Associate Professor of Family Medicine,
College of Medicine, King Faisal
University
Dammam, Kingdom of Saudi Arabia
Member, Scientific Council, Arab
Board of Medical Specialties
NABIL YASSIN AL KURASHI, M.B.B.S.,
FFCM (KFU)
President, Saudi Society of Family
& Community Medicine
Associate Professor of Family Medicine,
College of Medicine, King Faisal University
Dammam, Kingdom of Saudi Arabia
Member, Scientific Council, Arab Board
of Medical Specialties
Email: dr_nabil_kurashi@yahoo.com
Phone + (966) 8966666 ex 3079
|
Home health care (HHC) is
that component of a continuum of comprehensive
health care whereby health services are
provided to individuals and families in
their places of residence for the purpose
of promoting, maintaining or restoring health,
or maximizing the level of independence,
while minimizing the effects of disability
and illness, including terminal illness.
(9) Even if HHC programs have been established
as hospital-based programs for over the
past ten years to solve the long-term occupancy
of their hospital beds, it has just started
in Saudi Arabia. There are no-community-based
HHC services in the country.
The members of the home health care team
may include: physician, nurse, medical social
worker, home health aide, physician's assistant,
psychologist, paid homemaker, dentist, rehabilitation
personnel, dietician, optometrist, volunteer,
friend, and family caregiver. Each professional
from each discipline brings a special set
of knowledge, attitudes, and skills to home
care. The patient's needs and the requirements
outlined in the home care plan are the bases
of the level of involvement of each professional
in the home care. There may be overlapping
of functions because of patient's needs
and the intermittent, part-time nature of
professional home care services. (2) The
home care professional is alone in the patient
home with the patient, and must often provide,
in addition to the planned professional
interventions, a general view of the entire
team's home care program. The shared tasks
are brief assessment of the overall effectiveness
of the comprehensive home care plan; assessment
of patient and caregiver interactions and
satisfaction with the home care program;
identification of any new problem; notification
of appropriate team member(s) for follow-up
of new problems; and encouragement and reinforcement
of instructions from other team members.(2)
Each team's composition depends on each
patient's needs and on its responsibilities
to take care of these needs.
Key words. Home Health Care (HHC)
Home health Care (HHC) is
a formal, regulated program of care provided
by a variety of health care professionals
in the patient's home. (1) The unique aspect
of home care is the nature of the collaborative
team effort.(2) Each professional from each
discipline brings a special set of knowledge,
attitudes, and skills to home care. The
patient's needs and the requirements outlined
in the home care plan are the bases of the
level of involvement of each professional
in the home care. There may be overlapping
of functions because of patient's needs
and the intermittent, part-time nature of
professional home care services. (2) Unlike
in hospital setting where other team members
are readily around, the home care professional
is alone in the patient home with the patient,
and must often provide, in addition to the
planned professional interventions, a general
view of the entire team's home care program.
The shared tasks are brief assessment of
the overall effectiveness of the comprehensive
home care plan; assessment of patient and
caregiver interactions and satisfaction
with the home care program; identification
of any new problem; notification of appropriate
team member(s) for follow-up of new problems;
and encouragement and reinforcement of instructions
from other team members.(2) Each team's
composition depends on its responsibilities
which each patient needs. A HHC team may
include any of the following: physician,
nurse, medical social worker, home health
aide, physician's assistant, psychologist,
paid homemaker, dentist, rehabilitation
personnel, dietician, optometrist, volunteer,
friend, and family caregiver.(2)
This article is a review of literature on
the role of HHC team members.
According to Home Health Care websites,
the home health care team consists of physicians,
nurses, home health aides, medical social
workers and therapists who coordinate care
based on an individual's needs. (3,4,5,6,7)
The physician's role in the HHC team
cannot be undermined.(8) Home visits very
important to HHC for many reasons. They
can help the physician gather information
that may not have been uncovered in the
office visit as evidence of neglect, incontinence,
or use of multiple medications, understand
better the environmental and family factors
that might influence a person's health,
and assess better pertinent activities of
daily living and clarification of a situation
that may have been perplexing in the office
setting. Home visits serve as opportunities
to monitor home care service. Physicians
can act as administrators and active participants.
By knowing the patient's baseline data,
the physician can direct other health care
professionals who are members of the HHC
team. By understanding the role of each
team member, the primary care physician
will be able to provide more cost effective
care. Another purpose of home visits is
providing emotional support to the patient
and the family. When a patient is seen by
a physician in the home, fears of being
abandoned will be relieved.(9)
There are two models for physician participation
in the HHC team. The common model shows
the physician relying on the home health
care nurse to be liaison, team leader, and
coordinator in addition to performing the
regular nursing activities. (2) The second
model is active physician participation
in HHC. A mnemonic INHOME (9) (which stands
for Immobility, Nutrition, Home Environment,
Other home health care team members) was
devised to help family physician remember
its role. It expanded to INHOMESSS4 (which
stands for Immobility, Nutrition, Home Environment,
Other home health care team members, Medications
Examination, Safety, Spiritual Health, and
Services by home health agencies).
Corrective interventions can be made by
physicians when proper assessment can be
done of patient's mobility (daily activities
of bathing, dressing, feeding, toileting,
continence, shopping for food, paying bills,
preparing meals, doing homework, etc.) and
these can be properly evaluated more properly
in the home. Corrected interventions can
be made at any deficiencies noted. (9,10)
Physicians can better evaluate the patient's
current nutritional status and state of
hydration as well as his capabilities for
maintenance of proper nutrition. (9,10)
The patient's home environment should allow
for privacy, social interaction and both
spiritual and emotional comfort and safety.
It can also reflect the patient's interests
and hobbies. The physician can assess the
patient's safety and sense of security in
his home, and thus can recommend activities
which the patient can do at home.(10)
Family physicians should evaluate and assess
the other home health care team members'
tasks. As the patient's social support system
cannot be fully appreciated during office
visit, the accessibility and helpfulness
of family members and neighbors, especially
in an emergency situation, need to be evaluated.
Evaluation of the caregiver's needs and
risk of burnout is critically important.
(10) In the home, cues for caregiver stress
or burnout are more evident and can be assessed
easier, thus recommendations for respite
care can be made more easily (9, 11)
The physician can assess the patient's medicine
cabinet to be certain of the full extent
of the prescription and nonprescription
drug use by an individual patient, (9) and
also allow a direct estimate of patient
compliance, uncover evidence of "doctor
shopping," and identify the use or
abuse of over-the-counter medications and
herbal remedies.(10)
The physician should be able to assess the
patient's and caregivers' ability to manage
the equipment at home such as ventilators,
peak flow meter, self monitoring glucose
levels, and others so as to teach them the
proper use of each.(9,10)
Home safety assessment is done to assess
the patient's environment as to his comfort
and safety so that unreasonable injury is
avoided. The physician should simply state
the intention to identify and help modify
condition to ensure safety. (10) Home safety
elements are: furniture such as tables and
chairs, stairs, bathroom, loose carpets
and throw rugs, lighting and night lights,
emergency actions and safety route, fire
and smoke detectors, and fire extinguishers,
water source, hot water heater, heating
and air conditioning, gas and electric utilities.
The physician should well know that religion
and tradition plays a strong role in Saudi
Arabian society. The physician's ability
to fast and to pray may be affected by his
illness, and the physician should be able
to assess this. He should be able to convince
the patient on the medical aspect of health.
The nurse's role in the team is very
important in the HHC since the most
HHC service is provided by nurses. (10)
The nurse collaborates with the physician
to provide the patient with home care that
he needs. Home care nurses also work with
various personnel from ancillary disciplines
to coordinate services designed to optimize
a client's quality of life. A nurse determines
the type and frequency of nursing interventions
to be implemented and evaluates the patient
for any needed ancillary services when performing
a client's initial assessment. (10) The
home care nurses primarily implement the
medical and nursing care plans and identify
needs for ancillary services and make recommendations
to physicians. (12) Physicians revise treatment
plans based on the nurse's report of changes
in the patient since they see the patient
frequently than the doctor. Developing comprehensive
problem lists and assessment of care and
goal plans are HHC nurses' responsibilities,
too.(10, 11) All the HHC team personnel
perform initial assessments, and subsequent
assessment hereto after which all there
services are based from; these they coordinate
with the nurse. Case conferences are held
wherein multidisciplinary team meets collectively
to brainstorm strategies that will most
effectively help patients to achieve their
goals which the team members' goals are
compatible with. The nurse coordinator establishes
a schedule of visits with several people
performing different interventions in rapid
succession do not overwhelm patients. Lack
of communication can cause unnecessary conflicts
in treatment plans that send mixed messages
to patients and lay caregivers, thus resulting
in lay caregivers to lose trust in the home
care team. The nurse coordinator sees to
it that regular communication is important
to ensure that interventions are complementary.
(10, 11)
In addition, the nurse should provide the
documentation, keeping all patient data
(patient clinical assessment, diagnosis,
HHC treatment plan, objectives, and goals)
recorded. (10,12) Nurses must also stay
in contact with different community services
and organizations which will meet the comprehensive
long-term needs of patients as: equipment,
medical supplies, food, socialization, laboratory
testing, and personal care. These organizations
can facilitate and enhance the ability of
patients to maintain independence in their
own homes.(10,13)
|
|
The Pharmacist's role in the
HHC team is guided by the American Society
for Hospital Pharmacists' guidelines. He
is responsible for willingness and ability
of the patient or caregiver to be trained
to properly administer medication; and appropriate
indication, dose, route and method of administration
of medication; and appropriate laboratory
test for monitoring patient to medication
orders. The appropriateness of whether the
first dose of medication is to be given
in the home should be guided by clinical
judgment. The pharmacist should ensure that
the patient or caregiver receives the appropriate
education, training, and counseling regarding
the patient's drug therapy. Pharmacist should
be readily accessible in the event that
problems or questions arise. The pharmacist
should use clinical judgment for many procedures
and equipment use and maintenance, home
inventory maintenance, and procedures for
securing additional supplies and medication
when needed, potential adverse effects,
drugs interactions, drug nutrient interaction,
and their management; special precautions
for the preparation, storage handling, disposal
of the drug, supplies and biomedical waste,
and emergency procedures. (13) The pharmacist
with the patients or caregiver and other
health care professionals is responsible
for developing an appropriate pharmaceutical
plan for each patient.
The physical therapist's role in the team
is helping evaluate a patient's need for
assistive devices (such as canes, walkers,
crutches) and educate patients about their
safe and appropriate use. He also assists
patients to improve mobility and to reduce
the risk of injuries resulting from accidents.
He is most useful in putting up a plan for
patients with mobility problems, difficulties
with ambulation, transfers, or bed mobility
and chronic pain, balance or coordination
problems, or decreased range of motion and
strength. He establishes the home exercise
program to enhance or maintain a client's
range of motion, muscle strength, and endurance.
(9,10)
The occupational therapist's role in the
HHC team is managing patients with diseases
or disabilities affecting their functional
status. Occupational therapists provide
services to increase a patient's ability
to perform activities of daily living such
as: bathing, dressing, toileting, cooking,
eating, and homemaking. They instruct clients
on techniques on techniques, equipment,
and aids that can help them to overcome
their disabilities.(11) They also assist
patients incapacitated by illness or injury
with adapting their homes to improve functionality,
as well as educate patients with reduced
respiratory capacity (such as COPD, CHF)
or with chronically compromised strength
and endurance (such as muscular dystrophies)
in energy conservation techniques. (10)
They may recommend ways to adapt clothing
that enable patients to dress themselves
, use specially designed utensils or devices
that will help patients maximize their autonomy,
which can profoundly affect self-esteem
and the ability to leave alone. (10, 11)
Occupational therapists develop exercise
programs for home care patients who have
decreased functions in upper extremity or
hand because of impairment such as nerve
or brain injury, or CVA. They can apply
splints which are used to rest inflamed
joints in optimal positions to prevent or
to correct deformities. Occupational therapist
also deals with applications for home adaptations,
including stair lights or rails, grab rails,
bathroom adaptation, widening door for wheel
chairs, and positions of switches and extra
heating appliances. (10)
In addition, the nurse
should provide the documentation, keeping
all patient data (patient clinical assessment,
diagnosis, HHC treatment plan, objectives,
and goals) recorded. (10,12) Nurses must
also stay in contact with different community
services and organizations which will meet
the comprehensive long-term needs of patients
as: equipment, medical supplies, food, socialization,
laboratory testing, and personal care. These
organizations can facilitate and enhance
the ability of patients to maintain independence
in their own homes.(10,13)
The Pharmacist's role in the HHC team is
guided by the American Society for Hospital
Pharmacists' guidelines. He is responsible
for willingness and ability of the patient
or caregiver to be trained to properly administer
medication; and appropriate indication,
dose, route and method of administration
of medication; and appropriate laboratory
test for monitoring patient to medication
orders. The appropriateness of whether the
first dose of medication is to be given
in the home should be guided by clinical
judgment. The pharmacist should ensure that
the patient or caregiver receives the appropriate
education, training, and counseling regarding
the patient's drug therapy. Pharmacist should
be readily accessible in the event that
problems or questions arise. The pharmacist
should use clinical judgment for many procedures
and equipment use and maintenance, home
inventory maintenance, and procedures for
securing additional supplies and medication
when needed, potential adverse effects,
drugs interactions, drug nutrient interaction,
and their management; special precautions
for the preparation, storage handling, disposal
of the drug, supplies and biomedical waste,
and emergency procedures.(13) The pharmacist
with the patients or caregiver and other
health care professionals is responsible
for developing an appropriate pharmaceutical
plan for each patient.
The physical therapist's role in the team
is helping evaluate a patient's need for
assistive devices (such as canes, walkers,
crutches) and educate patients about their
safe and appropriate use. He also assists
patients to improve mobility and to reduce
the risk of injuries resulting from accidents.
He is most useful in putting up a plan for
patients with mobility problems, difficulties
with ambulation, transfers, or bed mobility
and chronic pain, balance or coordination
problems, or decreased range of motion and
strength. He establishes the home exercise
program to enhance or maintain a client's
range of motion, muscle strength, and endurance.
(9,10)
The occupational therapist's role in the
HHC team is managing patients with diseases
or disabilities affecting their functional
status. Occupational therapists provide
services to increase a patient's ability
to perform activities of daily living such
as: bathing, dressing, toileting, cooking,
eating, and homemaking. They instruct clients
on techniques on techniques, equipment,
and aids that can help them to overcome
their disabilities.(11) They also assist
patients incapacitated by illness or injury
with adapting their homes to improve functionality,
as well as educate patients with reduced
respiratory capacity (such as COPD, CHF)
or with chronically compromised strength
and endurance (such as muscular dystrophies)
in energy conservation techniques. (10)
They may recommend ways to adapt clothing
that enable patients to dress themselves
, use specially designed utensils or devices
that will help patients maximize their autonomy,
which can profoundly affect self-esteem
and the ability to leave alone. (10, 11)
Occupational therapists develop exercise
programs for home care patients who have
decreased functions in upper extremity or
hand because of impairment such as nerve
or brain injury, or CVA. They can apply
splints which are used to rest inflamed
joints in optimal positions to prevent or
to correct deformities. Occupational therapist
also deals with applications for home adaptations,
including stair lights or rails, grab rails,
bathroom adaptation, widening door for wheel
chairs, and positions of switches and extra
heating appliances. (10)
The primary objective
of a caregiver for an aging or disabled
individual is to provide a safe environment
combined with the highest level of achievable
independence. Fortunately, the home health
care industry and medical products manufacturers
have produced innovative products and equipment
designed to help patients maintain independence,
dignity and safety. Medical Supplies &
Equipment is a reliable, established home
health care supplier offering a wide range
of physician-prescribed home health care.(14)
The speech therapist's role in HHC team
is to help patients develop their remaining
communication skills and to learn compensatory
communication mechanisms through visual
cues and cognitive retraining. He sets up
a variety of communication aids and technology,
assists patients with learning sign language,
obtaining hearing aids or mastering the
use of an electrolarynx, and teaches them
to use a simple communication board that
includes common messages they wish to communicate,
which enable patients to point messages
on the board indicating whether they are
hungry, thirsty, hot, or cold. Recent advances
in computer technology provide telecommunication
systems for hearing loss patients which
transcribe spoken words into written messages
on a screen. (10)
The role of social workers in the HHC team
is to provide invaluable assistance to the
home care team by providing emotional and
psychological supports. Sometimes HHC becomes
stressful due to conflicts between the caregivers
and patients, limited community resources,
restrictions on the type and amount of care
provided, and the challenges to patient
autonomy that arise as a result of chronic
and acute illnesses.
When patients inexplicably fail to comply
with instructions outlined in their treatment
plans and the refusal of care to participate
in the care of a patient for reasons that
are not apparent to the clinicians involved,
social aspect of HHC management may appear.
The social worker is the key figure in access
to community care services for care of elderly
patients or old age psychiatry. (15) When
an extra support at home is needed, social
worker will start a formal assessment procedure
which varies from an initial assessment
of mobility, personal care abilities, and
current environment process involving input
from other members of HHC team and including
assessment of finances. (16) He links the
patients also to formal and informal sources
of support, and providing emotional support
to help them resolve feeling related to
loss, the burden of caregiver, and the need
to readjust relationships in the face of
illness and disability. (16) The social
worker's community-based activities of care
are coordination, health education, counseling,
assessment, and skill in facilitating decision
making related to ethical issues. To insure
that standard are maintained the social
worker will do regular inspection and monitoring
unit visit (16). The social services departments
provide 24 hour emergency call system for
people who are: elderly or disabled; living
alone or unable to use an ordinary or adopted
telephone, which consists of press button
and loud speaker installed in the phone
or a portable pendant that is worn around
the neck or as a bracelet or brooch.(16)
The role of home health aid in the HHC team
performs services involving the personal
care of the patient. The home health care
assistant works under the direct supervision
of the home care nurse to follow a course
care outlined in the written care plan.
(10) He may help the patient in bathing,
transferring in and out of bed, grooming,
dental care, exercise, and taking of medications.
He may also help with light housekeeping
chores, such as changing bed linens. (10)
A trained paid housekeeper can take this
role of the home health aid.
Family members can provide personal care,
wound care and administration of intravenous
medications.(17) Although HHC has the ability
to lower the more obvious health care costs
associated with hospitalization or long-term
institutional care, home health care may
also increase the personal cost to family
member's emotional, social, physical, and
financial well-being. (17, 18) If the patient's
informal support network becomes unable
to handle the increased burden resulting
from disease progression, treatment intensity
or depletion in available resources, home
health care may collapse. A home health
care team should consider the increased
family caregiver burden and try to decrease
it by looking for other alternative such
as respite care. The aim of respite care
is to ease the pressure of the caregiver
by substituting an alternative method of
care for a period of time which may be a
few hours, days or weeks.(16)
In cancer care, home health care team members
are composed of the following:(19,20) oncologist,
rehabilitation specialist, nurse, psychologist,
psychiatrist, social worker, dietary or
nutritional service , and home health aides.
The services of a rehabilitation specialist
help people recover from physical changes
caused by cancer or cancer treatment. It
includes the services of physical therapists,
occupational therapists, counselors, speech
therapists, and other professionals who
help you physically recover from cancer.
In Saudi Arabia, the results of the Al Hazmi
study 21 showed that health care professionals
had positive attitudes toward HHC services.
Virtually all health care professionals
agreed that there is a need for home health
care services in Saudi Arabia because of
their importance to patients. This was supported
by almost all their answers to the important
questions related to providing HHC to their
patient. This reflects from their experiences
from their professional day-to-day practice
the actual patients' needs of home health
care. It was also found out that no structured
HHC services were available in government
hospitals and PHHCs in Al-Khobar and Al-Dammam.
The quality of life of
the terminally ill patients relies heavily
on the psychosocial skills of health care
professionals. The health care team consists
of a physician, nurse, respiratory pharmacists,
therapists, social worker, home health aide
and volunteers. The team develops an individual
care plan, which will provide an appropriate
support system for the patient and their
family up to and beyond patient's death.
Weekly meetings allow the team to focus
on the changing needs of the patient and
make adjustments to their plan.(13)
|